Tuesday 26 November 2013

Holiday Challenge

Yay. exams are over and done with :) which means break time. I am so grateful for a long rest, but have actually begun looking for work.

I've actually set myself a challenge for over the holidays. NO MORE CAFFEINE  especially energy drinks cos they are my downfall. 

Day 4 now and I haven't had one yet. The first 2 days were terrible. I spent my whole weekend in bed as I did not have the energy to get up. yesterday was great thought. i felt better, had energy and managed to begin tidying my room. I also caught up with a friend who had been away for 6 weeks.

Today was execellent. I got up early and went exercising. Then I walked to the mall to buy a gift for my secret santa and had lunch, got groceries and went home

I think this has been awesome for my health...


But I find myself missing the taste of redbull and really really wanting one :(

Saturday 16 November 2013

Just a general whinge about stuff

I hate saturdays with a passion
I know it's my day off and I make so many plans to do so many things.

Today I was meant to go to the library to write my 2500 word essay, its due on tuesday :(. I slept until 11.30am woke up, had a smoke, watched tv and then went out for the afternoon to get lunch (took longer than I thought) got home at 4.30pm had an ice cream and went to sleep until 8pm.

it is now 10.30am and I have managed to write a measly 200 words.

I am so bad at spending my saturdays sleeping :(

I am also very stressed about these upcoming assignments. I have to write an essay, draw a bathroom plan, make a pamphlet about wheelchair usage, administer a writing test, and i have an oral and written exam. all in the next 6 days

I am too stressed to even write my essay :(

My stupid narco brain won't work

and i just wanna go to sleep


Tuesday 12 November 2013

sleepy school time

"good morning class, today we are going to be talking about"
"and then make sure the client..."
" remember to bring to bring your rulers to the next lecture. see you all tomorrow"
oh crap I've done it again. It's hard to get an education when your falling asleep in class and missing the content. This is a daily struggle for me though, on my journey to becoming a qualified occupational therapist.

Don't get me wrong, I love occupational therapy and I'm very passionate about it. But surviving 5 days of lectures a week, trying to listen to lecturers, read stuff and take notes while battling with narcolepsy is a full on struggle. some days are ok and everything goes well. somedays i try my best but still manage to end up sleeping on the desk.
its very embarrassing in a class of 80 people.

I missed another class this morning. 8.30 am starts are just to full on especially when the lectures run non-stop until 12. i haven't got the capacity to focus that long. I hate missing lectures, I know they are important to my education and if I could stay awake my grades would benefit. but somedays I physically don't have the energy to get out of bed. 

I thought the meds were meant to fix things :( classes are better now, but i still spend the day feeling mentally exhausted with no energy for anything.

each day seems to be the same.

Monday 11 November 2013

Dear Diagnosis

This is my first blog, relating to my Narcolepsy and I thought i would start by sharing my Dear Diagnosis letter. I will get better at the blogging thing over time. but here is my first attempt.

Dear Diagnosis
It’s nice to finally have an explaination for the sleeping in class and not being able to watch movies. I’m just upset we didn’t find out earlier, I would have been able to apply for assistance for my physics exams. I’m really gutted I didn’t get into physics at Uni.
It’s ok though. I really enjoy studying occupational therapy. It’s very hard though some days. I feel like I miss a lot of important information when I fall asleep in class though. Its also very embarrassing in a room of 60 people that I barely know.
I am excited about finding medication to help me. I hope this helps with my ability to function in Class. I hope it helps my grades improve. C’s & B’s are great and I’m just happy I’m passing, but I would love to get an A one day. Here’s hoping.
I am also excited about the thing’s I’ll be able to do with medication. I hope this means I can see my friends more and go out more often instead of sleeping my weekends and spare time away. I want to take up a sport. And go fishing more often.
Well diagnosis I’m glad I finally found out about you. It’s nice to have an understanding of why these horrible things are happening to me and I am definitely looking forward to the treatment, and the new things I will be able to do.

Here’s to a better future

From Jessie.